The absolutely most scary thing in all the world is becoming unable to care for yourself and ending up in a nursing home to fritter away your last days in the dayroom watching TV. And as a fitting irony this “final option” costs a fortune and will drain your life savings quicker than you can say, “poor old thing.” The only bright spot to this scenario is maybe you will be a happy Alzheimer’s case and not care a fig. Just hope your children can rise to the task of managing your last days.
Kelly Green (2012) has some excellent advice on how to plan for your time of growing dependence “on the kindness of strangers.” But it’s that sort of advanced planning that falls in with buying a cemetery plot or clearing out the junk in the attic. Few people actually do it until one must, and then even though it’s a nerve racking crisis, no one learns from the experience.
My parents had an awful time with twelve years of both being limited to wheelchairs and a full-time staff of three caregivers. They remained in their home and, while my Dad had a brief nursing home stay, they both died at home. So it was probably as good as it was going to be but it was still awful.
Now, my wife and I are a little better prepared for our decline but it’s still not something that is part of the flow of our lives.
The end of life is an anomaly and a product of our culture. We have lost the extended family that took care of everyone all the time. When one was born there was an old person in the house dying. We lived in a process that supported us throughout life. We have lost that and are replacing the once extended family with various sorts of institutions that meet specific needs.
Now the old model of everyone living and working in one place and providing support at all stages of development was not a model of choice but one of necessity. There were no outside institutions nor funding sources to pay for them. Everyone did what they had to do.
Still there is a lot to say about a communal life as opposed to an institutional one.
Join us for a real-time discussion about questions raised by this essay on any Wednesday morning at 8:15 to 8:45 a.m. See Discussion and SL tabs above for details. Link to the virtual meeting room: http://tinyurl.com/cjfx9ag.
For Further Reading:
- Greene, K. The Cost of Living Longer. Wall Street Journal, Family Finances, 10-26-2012, http://online.wsj.com/article/SB10001424052970203937004578079184108523030.html.
- Niederhaus, SG & Graham, JL. Together Again: A Creative Guide to Successful Multigenerational Living. M. Evans (Rowman & Littefield Publishing), Lanham, Maryland, 2007, http://www.togetheragainbook.com/
Sources:
- Image from the Vibrant Nation website – http://www.vibrantnation.com/wp-content/uploads/family5.jpg
- The title comes from A Streetcar Named Desire by Tennessee Williams http://www.imdb.com/title/tt0044081/quotes?qt=qt0215723
November 14, 2012 at 9:37 am
Weekly Discussion on Aging – Transcript 11-14-2012
[06:09] Rodger Markova: Hiya Timothy.
[06:10] timothyhutton: Bill in RL. Ellen’s husband.
[06:10] Rodger Markova: OK. Hi Bill. Yes, now I remember
[06:15] timothyhutton: Ellen is running a little late
[06:15] Rodger Markova: That’s ok.
[06:19] timothyhutton: Do you have elderly parents that you care for?
[06:19] Rodger Markova: My parents passed away some time ago. they were in their 90s.
[06:19] timothyhutton: Wow
[06:20] timothyhutton: My mom is in Friendswood @ Emeritus
[06:20] Rodger Markova: Emeritus? That’s new as I used to live in Friendswood
[06:21] timothyhutton: It’s at the intersection of 518 & Winding Way
[06:21] Rodger Markova: kk
[06:21] Rodger Markova: Good place?
[06:22] timothyhutton: I think so, but I don’t live there.
[06:22] Rodger Markova: Yes, true
[06:22] timothyhutton: Mom complains about the food. … but it’s institutional.
[06:22] Rodger Markova: Yes, I’ll bet. Why is that always an issue
[06:23] timothyhutton: We take her out as much as we can
[06:23] Rodger Markova: That’s great.
[06:24] timothyhutton: I read a few of the other blogs. I like the different generations living together. I always thought child care and seniors would be a good match together.
[06:26] Elle Bellah is online.
[06:26] timothyhutton: Seniors have so much to offer the youth, if they can just get to them before the youth become too old… 8-10
[06:27] Rodger Markova: Yes, it gets quite complicated
[06:28] timothyhutton: Teenagers, of course, contain all the knowledge of the universe. You can’t tell them anything they don’t already know
[06:28] Rodger Markova: Yes
[06:29] Elle Bellah: Hello
[06:29] timothyhutton: Ahhhh, the wife
[06:29] Rodger Markova: Hi Ellen. How are you?
[06:29] Elle Bellah: Hi Rodger
[06:29] timothyhutton: Hi
[06:30] Elle Bellah: Hi Tim
[06:30] Rodger Markova: We began without you, but jump in.
[06:30] timothyhutton: Hi darlin’
[06:31] Rodger Markova: We have gotten off elders and on to teenagers
[06:31] Elle Bellah: sure, the communal life instead of intuitional… that is coming up in our family
[06:31] Elle Bellah: In what way off elders on teens?
[06:32] Rodger Markova: Just how teens know it all
[06:32] Elle Bellah: Oh, god yes
[06:32] Elle Bellah: but that is how it has always been till they turn 30 or so
[06:32] Rodger Markova: True
[06:32] timothyhutton: 30? 40 is now the new 30
[06:33] Elle Bellah: Probably
[06:34] Rodger Markova: Ellen, did anything in the blog strike a chord?
[06:34] timothyhutton: So what is a solution to the rising cost of elder care?
[06:34] timothyhutton: Especially assisted living
[06:34] Elle Bellah: Yes, our family options for rising costs… are that our family member has money.
[06:36] Elle Bellah: … but your blog’s comment on intuitional model vs communal care really struck a cord
[06:36] Rodger Markova: How so?
[06:37] Elle Bellah: it makes so much more sense to have my mother in-law in her own surroundings, rather than in a regimented institution
[06:37] Rodger Markova: So true
[06:37] timothyhutton: My gut feeling is that to make it affordable, I have to go find other seniors and set up my own facility in order to make it cost effective. But then we get into licensing issues.
[06:38] Rodger Markova: The small, “family-based” home is a growing model especially in small communities. If it’s only 3 or 4 people it falls into special licensing categories and has fewer official issues.
[06:38] Elle Bellah: Yes, if families were more involved for cost and choices in the model it would be so much better
[06:40] timothyhutton: I think it would take more individuals to cover all the bases 24/7
[06:40] Elle Bellah: Timothy here had the idea of a community where the family purchases the unit, a condo, has interest and ownership and maybe family gets involved with aspects of running the place or has input. Like cooking
[06:40] timothyhutton: Each family would want their own living space.
[06:40] Rodger Markova: Yes, cool idea.
[06:41] timothyhutton: One of my big issues is who is going to clean up the seniors. I can only do so much with my mom. Who in the family is going to do the “dirty work”
[06:43] Elle Bellah: … and the other issue is she has to meals at set times regimented like a camp, no autonomy and no fresh fruit!
[06:43] Rodger Markova: People tend to do it with their children. What’s so hard about your parents?
[06:44] timothyhutton: To me it’s different
[06:44] Elle Bellah: Adult body parts that are sex and taboo
[06:44] Rodger Markova: It is but only because we have developed our current set of values and emotions.
[06:44] Elle Bellah: Yes but most people feel that way or many.
[06:45] timothyhutton: Babies are so much easier to handle. Yes, our values and emotions play a part.
[06:45] Rodger Markova: Perhaps if we raised our children differently then taking care of parents, when that time came, would be more natural and a part of life.
[06:45] timothyhutton: You’re right, when necessary, I guess I’d get over it
[06:46] Rodger Markova: We have these body taboos that don’t serve us really
[06:46] Elle Bellah: I think that if the assisted care places modified, had more family involvement, workers were somehow elevated, such as given scholarships in health care ed, and families had a monetary vested interest things would improve.
[06:46] timothyhutton: They may not serve us, but it’s our values.
[06:47] Rodger Markova: … and values are learned, that’s why I say we need to do things differently and it’s “whole life” things we need to change.
[06:47] Elle Bellah: I think it needs to be motivators for families and workers, to help and change the facilities and the facility management finding a way to promote that.
[06:47] Elle Bellah: Yes, I agree a whole life change.
[06:47] Elle Bellah: How do we do this?
[06:48] Rodger Markova: Tricky that part…
[06:49] Rodger Markova: Our time is up. Thank you for participating today.
[06:49] timothyhutton: Thanks 4 having us
[06:49] Rodger Markova: I’m happy you came. Have a great day.
[06:50] Elle Bellah: thanks Rodger you too
[06:50] timothyhutton: u2